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Prostate Cancer

getting checked is better than dying

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Former Member08/04/2019 14:05:39
1322 forum posts

[This posting has been removed]

BackinBlack08/04/2019 14:46:49
89 forum posts
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Posted by Glyn44 on 08/04/2019 07:33:38:
Posted by BackinBlack on 07/04/2019 19:38:23:

Just a year since I was diagnosed with stage 2/3 Prostate Cancer. I had had regular "finger" examinations, up to about 3 years ago as I had for some time had a need to get up during the night for a pee. Findings were only of a slightly enlarged Prostate, no need to worry. Need to get up during the night increased to 2 sometimes 3 times, mentioned this to doctor, PSA test followed immediately which showed significantly raised PSA levels. Immediate referral to Urology department at Churchill Hospital Oxford. MRI and Multipoint biopsy followed quickly, then offered either surgery or radiotherapy plus hormone treatment. I chose surgery, 4.5 hour keyhole surgery, home next day a few weeks recuperation and almost back to normal. 8 Weeks from referral to Surgery, can't praise the Churchill team enough, they were brilliant.

A year on and all is clear.

If you're over 50 PSA tests are available on demand, so if in doubt get tested, it's only a simple blood test and might avoid the consequences of Prostate Cancer.

Ian

I am, as of last Friday, at this stage. Now awaiting a bone scan to ensure the C hasn’t spread. It goes into bones apparently. I’m told that if that is clear, then I get the hormone plus radiation treatment (every day for 4 to 7 weeks)

i haven’t been offered the keyhole surgery option. Do you think I should query that? The consultant mentioned that 1 in 8 men will suffer this, so yea get checked. Early is good.

Sorry to hear that. The positive thing is that you have been diagnosed.

I can only repeat the information given to me and can offer no advice except for people to get checked out at the first signs of anything untoward.

The Oncologist I saw explained that in my case the hormone treatment would have been carried out first for a period of 4-6 months, then radiation treatment every day for 4-6 weeks, then further hormone therapy for up to 9 months.

I felt that for me surgery was less disruptive.

It is well worth looking through the MacMillan Leaflets explaining the surgery and radiation procedures and their respective benefits and downsides.

Ben B08/04/2019 16:21:12
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1390 forum posts
4 photos
Posted by David Mellor on 08/04/2019 14:05:39:

As I said, I'm sure the post is well intentioned.

It's just based on 20 odd years of doing DREs and acceptance amongst clinicians that it's a fairly unhelpful test and good evidence that many clinicians struggle interpreting what they're finding. I still do it on an almost daily basis (patients expect it and usually after discussion agree to have it). However my post was an attempt to point out that DRE isn't the be all and end all of prostate checking and very useful monitoring could occur without it.

IE most of the time people agree to a DRE but lots more don't come to get screened because they falsely think that screening only occurs via DRE and don't want one. Which is beyond a shame.

Martian08/04/2019 16:25:43
2169 forum posts
1058 photos

First lets be clear there are reliable sources for advice and information such as your GP and Prostate Cancer UK

my only aim for this thread is to draw attention to this cancer that has an absolutely painful and horrible way to die and 1 man every 45mins dies from Prostate Cancer that may have been successfully treated.

many many thanks for you all for your anecdotal post who knows who it may help even if its only 1

Bump the lump

Ben B08/04/2019 16:27:57
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1390 forum posts
4 photos

http://www.annfammed.org/content/16/2/149 is one of many studies I'd point to

Digital Rectal Examination for Prostate Cancer Screening in Primary Care: A Systematic Review and Meta-Analysis

" CONCLUSION Given the considerable lack of evidence supporting its efficacy, we recommend against routine performance of DRE to screen for prostate cancer in the primary care setting. "

As said, it doesn't do harm to do it but people shouldn't be put off getting checked because of the fear of DRE when its fairly unhelpful in asymptomatic screening.

Piers Bowlan08/04/2019 17:04:14
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1768 forum posts
42 photos

Thank you Martian for this thread which raises awareness. yes

Raised PSA, DRE, T.R.U.S, MRI, Biopsy, but fortunately I am all clear. Don't die of embarrassment - get checked.

Former Member08/04/2019 17:51:35
1322 forum posts

[This posting has been removed]

Martian09/04/2019 17:27:38
2169 forum posts
1058 photos

Bump the Lump

SR 7109/04/2019 18:13:36
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271 forum posts
61 photos

I am waiting for a scan at the moment, I have it on the 26th this month

But I went to see the doctor at the end of January it's taken this amount of time to be scanned sad

Martian09/04/2019 18:37:09
2169 forum posts
1058 photos

Sorry to hear that sr71 did they put you on the cancer route ? My gp did that for me . The waiting is desperate even more so the longer it takes, I wish you well and pray you get your scan soon.

Keith Simmons10/04/2019 07:22:36
443 forum posts
6 photos

My dad died from Prostrate cancer a few years ago and it's a horrible way to go. He had a scan and was treated about 10 years ago, then was given an all clear with regular after checkups around the prostrate for a few years.

But the cancer had moved to a secondary site (bowel & liver) and had spread unchecked till it was too late. (My dad was going private and went to see a specialist but he only checked the prostrate and didn't think of other sites then)

I am having a scan next week but most of my family in the past who have died are from cancer, two from heart attacks and another from stroke.

SR 7110/04/2019 09:49:57
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271 forum posts
61 photos

Hi Martian thanks for the wishes, I take life as it comes and dishes out at 79 iv had a good one

But I intend to live to 100 so I get the telegram from soverin LOL

Roger T10/04/2019 16:06:17
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57 forum posts

For what it's worth....

I had some symptoms of nightime 'rear pain' a couple of times a year, causing me to need to get up to try to shift it by pooing or peeing (usually without success). No problem with either at any other time, so didn't fuss too much about it. Then my 5 year older brother called to say he had been diagnosed with prostate cancer and I might like to get mine checked.

Went to my very experienced (male) GP who 'gave me the finger' and confirmed that my prostate was enlarged (the only real thing that can be deduced from a DRE, unless the texture is like a pineapple, when you have reeeeaaaal problems!) and that the results of my PSA were a little above average (4.4, reasonable, apparently, for a 62 year old). As I had company medical insurance, I was referred to a private consultant who repeated the finger, PSA test and did a wee flow test (apparently like a fire hose on the day!!) and decided there was nothing of concern. I was prescribed Finasteride to reduce the prostate size but it was worth carrying on monitoring the PSA, due to my family history (and maybe worht his fees - cynical? Me?).

A couple of years on, the sequential PSA counts were starting to rise (5.9, 8.6) so I had a non-conclusive single probe biopsy and an ultrasound scan, followed later by a multi-needle biopsy (described as playing Battleships, to search for the 'Enemy' - except nowhere as much fun - peeing afterwards moved from Ribena, IrnBru, then back finally to the prescribed Lucozade colour! Not comfortable).

The m-n biopsy revealed 3 small (sub-mm) 'seeds', resulting in a 3:3 Gleason score, apparently the lowest and best rating for a confirmed cancer as you now know what's going on but it's not in any rush to develop. I had no other symptoms (now that the prostate had been shrunk to a more normal size).

Decision time. Options (I stress, for me) were:

Surgical removal of the prostate, followed by probable chemo/radiation treatment. This was the option my brother took.

Radiation blasting of the site, with follow on chemo to knock out anything missed. My brother also needed this as even without his prostate the marker PSA's were still significant (a hint that something might have been missed). He didn't enjoy this - it took several months to get over.

Observation. This meant regular PSA checks to make sure the Finasteride was controlling the prostate size (and limit the release of antigens due to its instability) which would allow any changes in the cancer site to be more easily monitored (it would ramp the PSA count up significantly above the Finasteride controlled level).

I've followed the last option. (Again) For me, it was the easiest choice.

I was worried about incontinence from removal or destroying the prostate (first two options) and the disruption of quality of my life. I justified this choice because the cancer is a slow grower and it was caught very, very early (almost pre-cancerous). I still have the other options downline, if I need them.

So, after a lengthy diatribe, what's the message.

If everything is okay, have a PSA test anyway. If the number is low, you have reassurance. If it's high, the GP will get another one and see if it's real (apparently, riding a racing bike can alter the number due to local damage/stimulation/whatever!!)

If you've got pee or rearend pain issues, go see your GP. Nobody lkes a pain in the rear, so getting it diagnosed and sorted makes life either more comfortable, or gets you into the system to sort out anything more serious. Information can be scary, but not as scary as being told nothing can be done 'cos you left it too late....

Do it. PSA testing is no worse than any other blood taking or injection and a finger in the rear is 'different' but you'll get over it!

Here endeth the lesson

RogerT

Roger T10/04/2019 16:20:59
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57 forum posts

PS

An MRI confirmed the seeds and their location and, apart from regular PSA counts and trips to the local urology department (retired now, and back in the NHS not private), my prostae has not needed any elevated medical attention for ages.

I'm scheduled another MRI to check for any changes later this year, with mention of another multi-needle biopsy 'if needed', but my life is generally unaffected - I still occasionally land short of the patch and can't get excited by quadcopters, but I don't think they can be put down to medical matters.

RogerT

Martian10/04/2019 18:07:04
2169 forum posts
1058 photos

Thank you very much Roger for your concise account I'm happy you are ok the route you took is most likely the one I will take . Good luck for your future and also to all you other guys that have gone through an anxious and traumatic time . But once again getting checked is better than dying .

Bruce Collinson12/04/2019 23:01:11
361 forum posts

I despair of the NHS.

A week ago I had an SMS text from my GP practice reminding me that I was due for my annual health check.

The last one was 2 years ago.

I rang, made the appointment and was told that this was about my cardio vascular condition, which is that in common with most self employed 64 year olds I take statins, with no discernible side effects incidentally.. I asked nursey if she would do a routine PSA test at the same time as I haven’t had one for two years, as she would be taking blood anyway. No, that wasn’t on her agenda, I would need to have a specific GP referral for her to take an additional sample of blood and a PSA test; would I like such a referral? Stupid question. You’ve got a needle in my arm, I haven’t had a test for 2 years, why on earth wouldn’t you do it simultaneously?

Doctor rang next day ( minor miracle) and spent 10 minutes in the middle of a meeting trying to talk me out of the test. The logic appeared to be that a raised reading could lead to shock and awe, up to and including a biopsy needle in an extremely painful place, whereas a low reading might promote unfounded complacency and an ultimately miserable demise. In other words I couldn’t win and I ought to get out more.

not being in complete awe of GPS but especially having been reminded of the folly of ignoring age and warnings by this off-beat but very timely post, I stood my ground on the logical basis that I could not possibly be worse off but might end up a lot better off and it was eventually agreed, and I sensed with some reluctance, that a blood sample for PSA would be taken simultaneously. However, I will,have to present my compliments not once but twice, for the results of the two separate tests and the repercussions thereof.

This is not joined up thinking.

whilst in this rant, my previous (studiously ignored) note on actinic keratoses lead to cryogenic removal of three of the little bu**ers from my forehead and a sign-off until the next time. Ignore these at your peril. The “urgent “ referral for this was a 10 week wait. I paid.

Happy landings!

BTC

cymaz13/04/2019 06:25:43
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8484 forum posts
1161 photos

Mrs C goes for her cervical smear and breast screening regularly.....it’s all on the NHS and is part of life’s routine.

So why can’t men have a regular PSA test ? Why should we have to fight and battle for it ?

SIMON CRAGG13/04/2019 06:45:14
355 forum posts
5 photos

I am what is called "Well Worried". I am very lucky @ 68 that apart from a few minor niggles still more or less 100%.

I get a PSA check / blood pressure / cholesterol check every year to try and catch anything early.

This is a superb thread, and I sincerely wish everybody on here, a pain free and long life.

And of course........plenty of stick time.

Geoff Parkes13/04/2019 09:26:03
99 forum posts

I agree with all comments regarding getting check ups as often as possible , my prostate problems started about 10 years ago, during a visit to my G.P. he asked me how many times I had to go to the toilet during the night , I told him maybe 2-3 times he gave me a rectal exam there and then, the result was an enlarged prostate, a P.S.A. test confirmed a reading of approx.5 if I remember correctly, in those days in the West Mids. area a multy sample biopsy was done and then an M.R.I done after the biopsy, a flow test was also taken the result of all this was I was prescribed Tamsulosin once a day and my P.S.A was checked every 6 then 12 months. about 4 years ago my P.S.A. started to drift up- got to 8 at one stage , this resulted to referal to the urology clinic again, but this time a M.R.I. was taken before the biopsy, I think this gives them some idea where to take the samples? the result of this was I was prescribed with 1 tablet of finasteride to try and control the prostate, I still have to have P.S.A. tests every year but at the moment the readings are between 4-5 . My doctor told me that nearly every man dies with some sort of prostate problem but not many die as a course of it. I am now 74 still have to get up in the night , but if going for tests , biopsies and taking an incresing number of prescribed medicens keeps me fit enough to enjoy building and flying toy planes I think its a small price to pay.

Former Member13/04/2019 09:52:49
1322 forum posts

[This posting has been removed]

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