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Prostate Cancer

getting checked is better than dying

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Martian03/08/2019 11:32:42
2215 forum posts
1085 photos

Sorry to hear that Glenn ,try checking the forum on http://Prostatecanceruk.org

Edited By Martian on 03/08/2019 11:34:39

Andy Joyce05/08/2019 18:10:09
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54 forum posts
15 photos

Has anybody had the robot assisted radical prostatectomy?

Martian05/08/2019 18:14:34
2215 forum posts
1085 photos

Hi Andy try the link above for info there are 16 articles to check out

Andy Joyce06/08/2019 18:31:46
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Thanks Martian, quickly read through the articles on that site but will find out more when I see the surgeon latter this week.

Andy Joyce06/08/2019 18:34:28
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Apparently robotic assistance is not a new concept as met a girl at work today who said her grandfather had the same method of operation 5 years ago in Cambridge.. with only some minor complications! None specific on what these were though.

Martian06/08/2019 20:10:29
2215 forum posts
1085 photos

It's right to find everything you can ask questions like what benefit does that method offer over others

BackinBlack06/08/2019 20:17:43
91 forum posts
1 photos
Posted by Andy Joyce on 05/08/2019 18:10:09:

Has anybody had the robot assisted radical prostatectomy?

Hi Andy, Yes, I had a radical prostatectomy almost 15 months ago at the Churchill, Oxford at 69 years old. It took just under 8 weeks from initial referral to my operation. I had an MRI scan, semi robotic biopsies (14!) which showed the cancer was contained within the Prostate but was advanced.

I was offered the choice of Surgery or Radiation therapy. I had decided from the outset that Surgery would be my preferred option. The prospect of 6 months or so of hormone treatment, 4 weeks of radiation, the up to 9 months or more of hormone treatment did not enthral me.

The operation was very straightforward, admitted late on Saturday morning, straight to Theatre, about 5 hours later woke up in recovery ward, even had a meal later in the evening. Left Hospital after Lunch on Sunday.

Catheter removed after 10 days, pee under control a few days after that. Also had 28 days of self injected Heparin, used to help prevent blood clots.

Erectile functions now need a little help, a small price to pay.

PSA levels now down to 0.01, so all is well.

Good Luck

Ian

Edited By BackinBlack on 06/08/2019 20:18:08

Andy Joyce07/08/2019 09:45:57
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54 forum posts
15 photos

Thanks for the info Ian. My Gleason score is 7 with a PSA of 16, so still unclear what route I should go down for treatment.

Certainly pee control is an issue for me as had an issue of leaking fluids following the biopsy. Assuming the same would occur following removal of the prostrate.

Engine Doctor07/08/2019 11:09:09
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Posted by Andy Joyce on 05/08/2019 18:10:09:

Has anybody had the robot assisted radical prostatectomy?

Yes a friend at our club had it about 10 or 11 months ago . He is doing very well and was back at our indoor meetings within three weeks of having the procedure. He now has pee under control but did say he leaked a bit for a few months . He , as s most agree that loss of erectile function is a small price to pay .

Good luck and hope all goes well.

Andy Joyce07/08/2019 18:04:06
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54 forum posts
15 photos

Well got a totally different consultation style today from the oncologist who was very good in explaining her treatment methods. Only 2 of the 18 samples taken showed signs of cancer with a score of 7, so not all doom and gloom as first presented. Was told I have no need to rush which path of treatment I need to take. Going to see the surgeon tomorrow so will see what he has to say before taking a decision.

Martian07/08/2019 18:11:19
2215 forum posts
1085 photos

That's brilliant Andy I hope it continues so

Brian Dickinson 307/08/2019 20:42:59
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12 forum posts

Hello Andy,

I was diagnosed at 52 with a score of 7. This was after a second opinion on the test results - biopsy.

I had mine removed by Davinci robot at LGI.

I was back at work at 6 weeks, a bit early but i work for myself.

At the 6 week post op meeting i was told that it was close to the margins of my bladder and as such had 6 weeks of Radio therapy, which i had hoped to miss.

This was all in 2012 and i am fit and well now - just walked three miles this evening enjoying looking at the sea.

I hope all works out for you.

Regards

Brian

Gordon Serpis 108/08/2019 11:44:46
12 forum posts
4 photos

Hi Andy

arriving a tad late to this discussion but i had a radical prostate radical prostatectomy via robot assisted surgery back in April 2018. In truth this process is actually key hole surgery so not very invasive - having said that it did involve 5 punctures to my stomach area as the surgeon uses a system of rods, cameras etc to do the work of removing the prostate. For me the surgery was of no consequence but the challenge was the "collateral damage" that is involved in such procedures.

I would ask your consultant about "nerve sparing" as well as brachytherapy as an option. Ref incontinence, most chaps recover full control in time with only 5% of men needing further help to achieve a level of control- i am one of the 5% so have undergone further treatment. I am sure your consultant has emphasised the importance of carrying out pelvic floor exercises well before any surgery? Take this advice and you will be fine should you progress to any form of surgery.

Each case is different so if you want to discuss further then please PM me and i'll be happy to discuss further but bear in mind it will only be my own perspective so may not be appropriate for this public forum.

Whatever, i wish you well in the future, your chances of recovery are extremely high.

My local health authority did actually have a DaVinci machine but i believe was returned as it was a high cost process! But there are so many options now so not really an issue.

Gordon

Plummet21/08/2019 19:33:25
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1392 forum posts
41 photos

Another vote for encouraging the tests and exams. Both my Father and Grandfather had bad problems from the prostate. I was tested over the winter and was all clear.

However, this afternoon we came back from the hospital after getting the results of another operation. All was as good as it could be.

A few weeks ago my wife, aka Flappit, had a mammogram and they found a couple of tiny tumours. The good old NHS has been marvellous, she had the op, and today she had the dressings off and got the pathology results. The op had gone well and everything is as good as it can be.

So, get your prostate exams and encourage folk to go for their mammograms.

I will start another thread so that Ms. Aeromodelers might be encouraged.

Plummet

Martian21/08/2019 22:15:46
2215 forum posts
1085 photos

Thanks for sharing Plummet hope your wife makes a full recovery

Andy Joyce11/09/2019 19:52:22
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54 forum posts
15 photos

Now been on my hormone treatment for 1 month so interested to know how all others are doing who are going down the radio therapy route. No side effects with the treatment so far, but don't know quite what to expect.

fly-navy11/09/2019 22:43:12
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395 forum posts
11 photos

Had my first injection in July plus tablets and second one in Aug Andy, last one was a three month one because of holidays. Saw consultant after bone scan and she said no sign of any spread so booked me ctrl scan before we came away, got another app with her end of Oct so don't know if there will be a letter when we get back for radio therapy dates. Side effects, none, only the hot flushes. I honestly feel great.

John

Martian12/09/2019 11:13:51
2215 forum posts
1085 photos

I hope it goes well Andy and thumbs up John. Just had my latest blood test results show a PSA of 5.7 which is an increase from last one but nothing to be concerned about apparently 😱

Andy Joyce12/09/2019 18:14:59
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54 forum posts
15 photos

That's good to hear Martian, hope it stays around that value. My count was 16 which dictated further investigation.

Glyn4412/09/2019 19:10:56
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698 forum posts
92 photos

Hi Andy,

I've been on hormone treatment for months. I found they completely destroy your mojo. Make you tired, and give you hot flushes. As of today I have 5 radiotherapy sessions to complete (finish next Wednesday) I was only prescribed 20 doses, many guys there are having many more. This therapy is painless, problem being you have to attend daily (not weekends) I had to arrive 1 hour before treatment, a self administered enema is employed, that’s obviously great fun!

30 mins before appointment hopefully you will have cleared your bowel and bladder, now you cannot use the loo again, but have to drink 2 cups of water. Object here is to get your bladder and bowel into similar position every time.

The radiology is a breeze lay on a table, X-ray machine does an imaging scan, then after a final table adjustment a clockwise and a counterclockwise rotation irradiating the cancer. All in all the scan time is less than 10 mins.

jump off the table, repeat next day.

There can be side effects of course, they will be explained to you day one. Different for each patient. Mine not too bad. What happens next for me I’ve not been told yet.

Chin up treatment is very successful. Best wishes, sure you’ll be fine.

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