By continuing to use this site, you agree to our use of cookies. Find out more
Forum sponsored by:
Forum sponsored by CML

Prostate Cancer

getting checked is better than dying

All Topics | Latest Posts

Search for:  in Thread Title in  
Andy Joyce15/09/2019 18:23:17
avatar
154 forum posts
28 photos

Thanks Glyn for the info. Believe I get 20 treatments, but sure I will find out when I next see the consultant. Interesting about the enema, was not aware of that. Had a similar experience for a colon examination. Thought it had not worked then boy or boy did it do its job. Worst was the taste of the liquid they gave me.

No hot flushes as yet but certainly the interest in ones manly duties has reduced, so the drug must be working.

Glyn4415/09/2019 18:33:14
avatar
721 forum posts
92 photos

You don’t get to taste this type! Enjoy.

Andy Joyce16/09/2019 07:33:51
avatar
154 forum posts
28 photos

Spoke to soon about the hot flushes, on the positive side its the only thing that is heating up the bedroom.

David Ovenden21/09/2019 12:15:49
avatar
348 forum posts
17 photos

I know this thread has been running for a while as I’ve been following it. I’ve refrained from posting , even though I have prostate cancer, as I thought I needed to see how I progressed before saying too much. I think it might be good to post my experience now as we are not all the same and things seem to vary so much from person to person:

I went to the doc with peeing problems last summer. He told me “nothing to worry about” , its your age (63) - have some pills. They didn’t really help. So I went back to see him and he sent me for a blood test. Result a PSA of 9. I was worried when the results came through. The doctor said not to worry as it was highly unlikely I had cancer. I explained I was very worried as I had breast cancer in 2008 (Yes breast cancer -it happens to men too) I was told “not to worry, I very much doubt its cancer. I’ll send you to see a urologist” There was a 5 month wait for the appointment.

On seeing the specialist he did a rectal examination. Result - prostate enormous & v. hard. Bad news. 2 week wait for biopsy( which was excruciatingly painful). So this obviously varies enormously from person to person. Biopsy revealed Gleason 9 (5+4) and a rare high grade cancer. MRI tests showed the cancer had spread to my seminal vesicles (this was pretty bad news to receive )but thankfully no further. A bone scan showed no problems there, which was better news. Overall the conclusion was T3b prostate cancer.

David Ovenden21/09/2019 12:15:56
avatar
348 forum posts
17 photos

As far as treatment goes, I’ve had my prostate re-sectioned (TURP) so I can now pee normally again – hooray!. Plus I’ve had monthly hormone injections (Firmagon) since May. The result of the hormones is, as others have said, very frequent hot flushes but nothing worse in my case. (Even the manly function still mostly operates). 10 days after the first hormone injection had my PSA dropped from almost 10 to 0.17. After 3 month the consultant was amazed that my grossly enlarged prostate had almost “totally diminished” in size. (His words) He also wrote that it was “very encouraging”.

I am now 4 weeks into a 8 weeks course of daily radiotherapy. Thankfully the hospital has Rapid ARC machines which are very accurate and quick. Less than 2 minutes for the actual radiation part. Usually only 10 mins in total. As others have said, the hardest part is arriving ready with a full bladder and empty rectum after a one hour journey to the hospital. They did supply me with a jumbo pack of suppositories for daily use! So far after 4 weeks I have no real negative effects from the RT. There are till 4 weeks to go of course. I have stuck rigidly to the low-fibre diet that the consultant advises during the RT treatment. Sticking to the diet is much harder than having the treatment.

Currently the doctors are pretty positive and say my progress is good and are looking for a full cure. We will have to wait and see what the tests show after treatment is complete, and then what happens in the longer term. However, I am very positive that I will get through this and “see-off” this (2nd) cancer. I am feeling well and doing just about everything like normal. Next moth I am having some genetic tests to see what makes me so popular with cancer cells. Hopefully this will help others in my family in avoiding what I’ve been through.

Why am I writing this? It is certainly not for sympathy or because it’s pleasant to talk about. However, my experience may be a little different to someone else’s. It’s important we know that we are all different and that things don’t always happen in the same way. What I have learnt is:

  • Do insist on a second opinion if you are not happy with what the doctor says at first or, at least, insist on a referral sooner rather than later. Mine was classed as “non-urgent”.
  • Biopsies can vary enormously. Many say its’ “nothing” mine was excruciating even after local anaesthetic and gas/air mix.
  • In my case the hormone therapy was very effective in slowing down/reducing the cancer.
  • A serious cancer can be treated and treated successfully. Modern procedures and treatments can have a dramatic positive impact even with serious cancers.
  • Don’t despair. Stay positive and keep with the treatments.
  • Keep flying!
  • Oh! Did I mention? Get tested and don’t put off going to see the doctor if you have any concern about peeing or prostate. For most people it is not a problem. But you never know until you get it checked.
BackinBlack21/09/2019 16:58:39
109 forum posts
1 photos

David, Thank you for your story, so glad that things are going in the right direction for you.

It does highlight not only the different treatment experiences we have all had, but also the difference between medical professionals (and areas?) in assessing the need for and type of treatment offered.

Having related the usual pee symptoms to my GP, she immediately took a sample for PSA test. 2 days later I was recalled to the Surgery to be told they as I had a PSA of 8.5 I would be referred as urgent (to see a Consultant within 14 days). MRI and biopsies followed within a couple of weeks, treatment options offered, discussed and chosen with Radical Prostatectomy (DaVinci method) just 10 weeks after initial PSA results. Brilliant work by the Churchill Hospital, Oxford. Thankfully I now have over 12 months of PSA less than 0.01.

Ian

Andy Joyce22/12/2019 17:42:44
avatar
154 forum posts
28 photos

Trust we are all still in the land of the living.

Still waiting to start my radio therapy 5 months after starting on the hormone treatment but think I should go for the initial scans sometime in January.

Night sweets and urgency to pee during the night have caused minor issues, but now on tamsulosin which seems to be doing its job.

Trust all keep well over Christmas!

BackinBlack22/12/2019 18:35:03
109 forum posts
1 photos

All is well with me Andy.

Hope all goes well with the Scans and Radio Therapy.

Seasons Greetings to All.

Ian

fly-navy22/12/2019 18:36:12
avatar
411 forum posts
11 photos

Yes still kicking on. I have been put on a course of IMRT, 20 sessions, which gives a higher dose over a shorter period. They say this is more beneficial to the lower end and non aggressive cancer as it protects the good surrounding tissue and cells in the prostrate area. I have had 12 sessions so far and finish on 4th Jan. The low fibre diet is a pain, and all the water you have to drink plus the constipation powders I have to take each night. Sometimes I am lucky and don't have to get up in the night, other times once or maybe twice. It's a month of inconvenience out of my life I'm sure I can cope with that,staff at Deansely Centre New Cross are bloody brilliant.

Having Xmas dinner in New Year with me sprouts cabbage and cauli, heaven. Merry Crimbo guys,say safe and healthy.

John

Martian24/12/2019 10:48:16
2305 forum posts
1091 photos

Yes Happy Christmas to you all and I hope you all keep in relative good health

Glyn4424/12/2019 11:02:23
avatar
721 forum posts
92 photos

Yep, still here! I am not receiving any sort of treatment now. I have refused any more hormone injections from the practice nurse. No doctor/consultant has ever told me how long I should suffer them. So I’ve stopped. Not as radical as it may sound. I see my oncologist for the results of all my treatments on 27 January.

Fingers crossed there. So Seasons greetings to all, the treatment is solid.

Happy New Year.

David Ovenden09/01/2020 22:28:21
avatar
348 forum posts
17 photos

Happy New Year to you all. I trust that all your treatments are going well or finished now.

Happily I'm doing well. After 8 weeks RT my PSA is stable and has been down to 0.14 for 3 months now.

After 9 months I'm off monthly hormone injections and changed to one every 6 months which will be much more convenient. Fortunately I have not had any real problems apart from the dreaded hot flushes. My oncologist is very pleased with progress and I will see him in 6 months time for my next check.

I'm greatful for the good medical treatment I've received. Hope you all our PSA results stay rock bottom and we can now get on with enjoying life and get some flying in!

Enjoy the new decade!

Glyn4410/01/2020 07:48:27
avatar
721 forum posts
92 photos

Wishing all of you best wishes for 2020. My date with the oncologist has been brought forward to the 20 January, so not not long now. I’ve had a blood sample taken so he has the results on hand. So I’ve fingers crossed fo good news.

Hot flushes have gone! Will update on my my results soonest.

Martian10/01/2020 10:42:52
2305 forum posts
1091 photos

Hoping for positive news Glyn wish you well

Martian10/01/2020 10:43:52
2305 forum posts
1091 photos

Had my fourth blood test on my wait and see year just have to wait for results

Glyn4421/01/2020 12:31:57
avatar
721 forum posts
92 photos

Well I went to my oncologist yesterday, full of trepidation, I needn’t have worried. My PSA is down from 13 to 0.2. He’s pleased I’m over the moon!

Can stop the dreaded hormone injections (already had done so) Have an appointment for blood test January 2021.

So I’m ok it seems. I wish all of undergoing treatment the very best wishes. It works. Mine was diagnosed early, so if been for test, please do soonest.

Regards.

Martian21/01/2020 14:39:01
2305 forum posts
1091 photos

Brilliant news  Glynn 👍 ,my latest PSA readings indicate my cancer is stable

Edited By Martian on 21/01/2020 14:40:01

David Ovenden21/01/2020 21:38:12
avatar
348 forum posts
17 photos

Glynn and Martian. Great to hear that your PSA results are all good. Here's to a very healthy decade for all who have had, are are having, treatment.

Andy Joyce23/01/2020 18:43:49
avatar
154 forum posts
28 photos

Glad all are doing well. Started my radiotherapy this week. Took several attempts the first day to get my internal parts in the correct position but all seems well now so its daily sessions for the next three weeks.

Interested to hear how long you guys are having to go with the monthly injections. Keep asking, but nobody has told me when it all stops or indeed reduces. Have my first review next week so will ask again! The injections and resulting hot flushes are the worst part of this treatment.

David Ovenden23/01/2020 20:07:23
avatar
348 forum posts
17 photos

Hi Andy

All the best for the radiotherapy. I had 8 weeks of it and got through with no real issues. Only had 2 days when I wasn't suitably "full and empty"!

Re the hormone therapy I think it depends on individual circumstances, the type of cancer, and how advanced the cancer is. In my case the cancer was a very aggressive type (neuro endocrine) Gleason9 and was classed as T3b as it had reached my seminal vesicles. It has thankfully responded to treatment but my consultant is talking about me being on hormones for 3 years.

When the cancer is less aggressive and caught sooner I think hormone treatment can be much shorter. Hopefully you will not need to be on for too long. The hormones weaken the cancer cells so radiotherapy is more effective.

Edited By David Ovenden on 23/01/2020 20:08:54

All Topics | Latest Posts

Please login to post a reply.

Magazine Locator

Want the latest issue of RCM&E? Use our magazine locator link to find your nearest stockist!

Find RCM&E! 

Latest Forum Posts
Support Our Partners
Cambridge Gliding Club
electricwingman 2017
Wings & Wheels 2019
CML
Slec
CADMA
Sussex Model Centre
Advertise With Us
Sarik
Latest "For Sale" Ads
Do you use a throttle kill switch?
Q: This refers to electric-powered models but do you use a throttle kill switch?

 Yes
 No
 Sometimes
 Rarely

Latest Reviews
Digital Back Issues

RCM&E Digital Back Issues

Contact us

Contact us